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Last Thursday the Dynamite group for young disabled people held another pizza evening at the Frank Sorrell Centre in Southsea.

The purpose of the event was to talk about 'Emotional Wellbeing'.

Young people talked in groups about the names for different emotions, what those emotions felt like, and what they looked like to other people.

They also talked about who young people would talk to if they were feeling emotions which made them unhappy.

Finally young people talked about their own experiences of talking to people about those emotions and what they think could be done better to help young people cope with emotions which make them unhappy.

The groups took notes on everything that was talked about and those notes will help with a report which is being written on mental health services in the area. 

The aim of the report is to let services know what they are doing well and also what they should be doing better.

The report will be published at the end of February and we will feed back what that report says to the group.

Thank you to everyone who attended the event, the experiences and opinions that you shared will help make services better for other young people.

If you'd like to come to future Dynamite events then let us know and we will add you to our mailing list, just email dynamiteportsmouth@gmail.com

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  • Expert parentAre you the parent or carer of a child or young person with learning disabilities and behaviour that challenges?
  • Have you struggled to access appropriate health support for your child? 
  • Do you think parents need more support to understand how the health system can support their children with learning disabilities and behaviour that challenges?

The Council for Disabled Children is looking for parents to help us develop the curriculum for the Expert Parent Programme (EPP) tailored to parents of children and young people with learning disabilities and behaviour that challenges, as part of the NHS England Transforming Care programme.

Theyunderstand that this group of children and young people are too often left unsupported by health services which can have a long-term negative impact on whole families. The EPP supports parents to understand the health system and how to access the most effective health support for their children/young people. 

They are holding a development day on the 8th March from 11am-3pm in central London and are looking for parents to attend to share their experiences of accessing health services and suggestions to make this process easier that we can incorporate in to the existing EPP materials. 

If you are interested in attending please let Vicky know (vwatt-smith@ncb.org.uk) by 19 February, we will cover reasonable travel expenses and provide lunch.

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The theme of last week's Children's Mental Health week was Resilience and Angela Kelly from the Special Needs Jungle has written a guide to help and support building resilience in your son or daughter.

Angela explains that we all encounter difficult times throughout our lives whether at home, school or working lives. Inevitably, you come out the other side either relatively unscathed or, on occasion, with emotional scars that can stay with you for the rest of your life if not worked through. This, sadly, can start in childhood, even in otherwise functional families, caused by the emotional turmoil of not feeling they fit in at school, or feeling a failure in the eyes of others.

Understanding what resilience is and learning methods to encompass it within our daily lives can, quite literally, be a life-saver.

Resilience isn’t about not experiencing setbacks, challenges, accidents and illness in life. They happens to everyone. Resilience is all about how we deal with those challenges and come out stronger. And that's where the level of resilience can produce vastly different results from people even in the same family. While many children appear to take most things in their stride, others, especially those with special educational needs, can behave in ways that leave us, as parents, with little idea of how to help.

Angela's guide shares 10 area to be aware of as parents together with tips to help children learn resilience. 

To read this article in full please click on the link below:

http://www.specialneedsjungle.com/top-tips-for-mindful-parents-in-developing-your-childrens-resilience/

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Special Needs Jungle, Tania Tirraoro's latest article explains how a Wiki can be used to help with EHC plans and one page profiles.

Wikis are simple, accessible, secure and easy to build personal websites. They can be used to create multimedia person-centred plans that use pictures, words, video and sound to capture the voice, skills, aspirations and needs of the individual. Wikis give ownership of the planning process to individuals and families , facilitating genuine collaboration between parents, teachers and professionals. RIX Wikis can also be used as public websites to provide information about the Local Offer in a simple, accessible online format.

Tania met with Gosia Kwiatkowska, of RIX Research and Media at a recent SEND conference and Gosia has written an article for the SJN to explain to us all about how using their wiki puts the family or young person themself in control of their own information to promote person-centred practice. 

Using RIX Wikis to implement EHC plans

wiki1The SEND (Special Educational Needs and Disability) Reforms, launched in September 2014, introduced a system of support which focuses on positioning children and young people (aged 0-25) at the heart of planning and decision-making. They and their parents and carers must be able to participate in this process, putting the new Education, Health and Care Plans (ECHP) into place through person-centred practice and co-production with their education, health and care professionals. The focus is on support to improve outcomes for children and young people rather than simply provision of support.

These reforms demand that support professionals work together with children, young people and their families to ensure they have choice and control over their futures and enjoy full, healthy and active lives. It requires not only a legal but a cultural change. The round-table event at the Department for Education hosted by the SEND Minister, Ed Timpson, earlier this month highlighted that there are many challenges, including the necessary culture change, that still need to be tackled by local authorities and health services in implementing these reforms.

RIX have been working with a group of parents who have children aged between 4 and 19 with varying disabilities and complex needs, all of whom either had an EHCP or were in the process of an EHCP, and all of whom confirmed that their child’s views were not sought during their EHCP process. Rix wanted to explore how a multimedia approach to self-advocacy and using the RIX Wiki tool could improve their experience and participation in the EHCP process.

To read more about Rix Wikis please click on the link below to read the full article:

http://www.specialneedsjungle.com/one-page-profiles-and-ehc-plans-the-wiki-way/

 

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We are pleased to be supporting Children’s Mental Health Week (8–14 February)

Hosted by children’s mental health charity Place2Be, the theme of the week this year is 'building resilience' and teaching children to 'bounce forward' from life's challenges.

Bereavement, illness, family breakdown, bullying, pressure of exams… children carry far more than the weight of their backpack on their shoulders.

And while we cannot always change children's circumstances, we can teach them the skills to cope with the difficulties life throws at them.

3 children in every classroom have a diagnosable mental health problem and children are less likely to suffer from serious mental health difficulties later in life if they receive support at an early age.

Get involved

For more information and resources for parents, schools, youth clubs and teachers visit:

www.ChildrensMentalHealthweek.org.uk

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IOY February 2016 The February issue of 'Impacting on You' produced by Portsmouth Parent Voice is now available and includes lots of useful information. 

Please click on the link below to view:

pdfIOY_February_2016.pdf

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This Is My Child is a myth-busting and awareness-raising campaign, launched by mumsnet in response to requests from their members and supported by input from some of the leading charities in the field. 

Its aim is to support parents of children with additional needs, inform everyone else, and open up a conversation about how we can all act to make life easier for everyone caring for children with additional needs.

For this campaign to be a success they need it to reach far and wide, so please share as widely as possible.

For more information please click on the link below:

http://www.mumsnet.com/campaigns/this-is-my-child

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Minister Edward Timpson announces £80 million to extend opportunities to children with special educational needs and disabilities.

s300 FLR-Young-boy-in-wheelchair-and-blocksA multi-million pound package ensuring thousands of children with special educational needs and disability (SEND) have the same opportunities as any other child has been announced today (29 January 2016).

Children and Families Minister Edward Timpson said the £80 million would help transform the life chances of children across the country and ensure every child, regardless of the challenges they face, can ‘dream big’ and fulfil their potential.

As part of its mission to extend opportunity to all, the government has already introduced the biggest reforms to the SEND support system in a generation by placing children and their families at the heart of the system.

Today’s announcement will increase funding for councils and support charities who work with some of the most vulnerable young people in the country. Alongside this, the government is continuing transition funding in 2017 to 2018 to help implement the reforms introduced in 2014, building on the progress so far.

Thanks to the government’s reforms, for the first time ever the needs of children with complex SEND are all set out in one education, health and care (EHC) plan. It also means that councils are legally required to take the views of families into account when deciding on what support to offer.

Children and Families Minister Edward Timpson said:

"Our vision for children with special educational needs and disability is simple: that their aspirations are as high any other young person, that they dream big, achieve well at school and college, and lead fulfilling, happy lives."

"We’ve made fundamental changes to the law to provide that support and the work I’ve seen so far, putting families at the heart of the process, is inspiring - but we know there is still more to do to."

"I’m delighted that today we can announce that we are committing more money to councils than last year, helping to make the transition for families accessing support as smooth as possible."

To read more please visit

https://www.gov.uk/government/news/80-million-to-boost-support-for-special-educational-needs

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The aim at the Mayflower Theatre is to provide first-class entertainment that can be enjoyed by the largest audience possible and they are continually striving to achieve this goal.

As part of that goal they have worked with Autism Hampshire and City Eye to produce a film so that you can find out a bit more about your visit before you arrive at the theatre.

To find out more please visit https://www.mayflower.org.uk/Your_Visit/Accessibility

You can also view their film by clicking on the video link below:

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LOL 2016 flyerCome along to Portsmouth's Local Offer live event on Saturday 19th March from 10:00am to 3:00pm at Milton Cross Academy, Milton Road, Portsmouth PO3 6RB.

The event is open to parents/carers of children and young people with special needs (aged 0 to 25) along with their friends and families to find out about services and activities available in Portsmouth.

They have many activities taking place during the day including:

Workshops, free crèche facilities (if parent/carer book a place on a workshop), stalls, live music, refreshments, craft activities, exhibitors (representing statutory and voluntary services) and much more.

If you would like to book a stall, please complete the Stall Booking Form below:

docxStall_booking_form.docx

You can keep up to date with the latest information regarding the event via their Facebook page:

https://www.facebook.com/events/882303121886843/

For more information please call 07825 185 608 or email portsmouthparentvoice@hotmail.com 

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